19-year-old Lucy, who has Ehlers-Danlos Syndrome, has been writing a blog since 2012 about what it is like to live with a life-limiting and life-threatening illness. Here we republish one of this inspiring young woman’s recent posts on the importance of talking about death and of making the most of life. She also addresses misconceptions around hospices and palliative care.
Why is death such a taboo? It’s the only thing guaranteed in life. Everyone knows they will die at some point or anoth...
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