19-year-old Lucy, who has Ehlers-Danlos Syndrome, has been writing a blog since 2012 about what it is like to live with a life-limiting and life-threatening illness. Here we republish one of this inspiring young woman’s recent posts on the importance of talking about death and of making the most of life. She also addresses misconceptions around hospices and palliative care.
Why is death such a taboo? It’s the only thing guaranteed in life. Everyone knows they will die at some point or another. So why do we shy away from it? Whatever your beliefs, it will happen. Some people die before they’re born, others die after a long, fulfilling life. The rest of us fit in somewhere in between.
Not many of us actually want to die. We might want the suffering to end, the pain to stop, for things to change; but when it comes down to it, very few of us actually want our lives to end. Dying is not a sin nor necessarily a bad thing. Why is it treated as so? De
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